Company Profile

Save Sight Now

Company Overview

Save Sight Now is a California-based, Bay Area parent-led nonprofit focused on funding urgent, translational research to develop treatments for Usher syndrome type 1B—a rare inherited retinal disease and the leading genetic cause of combined deaf-blindness in children. Our work is centered on disciplined, clinic-oriented science, and we collaborate closely with industry partners, researchers, and patient families to accelerate credible pathways toward human clinical trials.

Founded in 2019, Save Sight Now was initially fiscally sponsored by the Foundation Fighting Blindness and transitioned to full independence in 2025. To date, we have raised over $3 million to support early translational efforts and strategic research programs. As our work advances toward clinical readiness, the organization is entering a critical growth phase that requires professional fundraising leadership to meaningfully expand revenue and support the next stage of scientific impact.

Positions Available
Sort by:
  1. Position
  2. ▲ Date
  3. Location
Show All Details
  • 5 days ago

    Director of Development

    Save Sight Now - San Rafael, CA, United States
    1. Save

    The RoleThe Director of Development will lead and execute Save Sight Now s fundraising efforts, with a primary focus on major gifts, sponsorship, and event-driven revenue. This role is responsible for driving meaningful revenue growth during a critical stage as the organization advances toward clinical readiness. This is a hands-on role for someone who can translate relationships into revenue, manage donor engagement directly, and follow through consistently. Working closely with the Executive ...

    See full job description